Determining The Burdens And Difficulties Faced By Families With İntellectually Disabled Children

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dc.authorid176790en_US
dc.authorid232223en_US
dc.authorid176789en_US
dc.authorid162331en_US
dc.authorid52309en_US
dc.contributor.authorBalcı, Serap
dc.contributor.authorKızıl, Hamiyet
dc.contributor.authorSavaşer, Selim
dc.contributor.authorDur, Şadiye
dc.contributor.authorMutlu, Birsen
dc.date.accessioned2019-12-29T11:45:46Z
dc.date.available2019-12-29T11:45:46Z
dc.date.issued2019
dc.departmentİstanbul Beykent Üniversitesien_US
dc.description.abstractObjectives: This descriptive research was conducted with the aim of determining the difficulties families with intellectually disabled children face and their family burdens. Methods: The research population consisted of the mothers of 220 children who are aged 0-18 and monitored at a Special Guidance and Research Center due to their intellectual disabilities. The sample group was composed of 160 mothers who consented to participate in the research. Results: Of the children, 36.9% had mild, 43.1% had moderate, and 20% had severe mental retardation. Of the mothers, 48.8% reported they had no one with whom to share the care of the child. Mothers also reported that they felt disappointment (38.8%), bewilderment (48.1%), shock (31.3%), desperation (52.5%), anger (16.9%), guilt (14.4%). Of the mothers, 13.1% blamed others, 61.9% accepted the situation as an act of God, 12.5% had thoughts of committing suicide, and 28.1% suffered from depression. On the "Family Burden Assessment Scale (FBAS)," 7.5% of the mothers got low scores, and 92.5% got high scores. Conclusion: This research found that most of the families felt anxious about the future, felt like their burden was too much to bear, and expected information and support from healthcare professionals.en_US
dc.identifier.citationJ Psychiatric Nurs 2019;10(2):124-130en_US
dc.identifier.doi10.14744/phd.2018.05657
dc.identifier.issn2149-374x
dc.identifier.scopus2-s2.0-85076486987en_US
dc.identifier.scopusqualityQ3en_US
dc.identifier.trdizinid349150en_US
dc.identifier.urihttps://search.trdizin.gov.tr/yayin/detay/349150
dc.identifier.urihttps://doi.org/10.14744/phd.2018.05657
dc.identifier.wosWOS:000482511700007en_US
dc.identifier.wosqualityN/Aen_US
dc.indekslendigikaynakWeb of Scienceen_US
dc.indekslendigikaynakScopusen_US
dc.indekslendigikaynakTR-Dizinen_US
dc.language.isoenen_US
dc.publisherKARE Yayıncılıken_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.subjectDifficultiesen_US
dc.subjectFamily burdenen_US
dc.subjectİntellectually disabled childen_US
dc.titleDetermining The Burdens And Difficulties Faced By Families With İntellectually Disabled Childrenen_US
dc.typeArticleen_US

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